K had her follow-up kidney ultrasound yesterday. The urologist tells me that the one kidney is still quite a bit enlarged. Unfortunately, the last measurement he has to compare yesterday’s to was taken in early June as they didn’t do any measurements in September when she had a renal scan. (Really, WHY is beyond me. I’m no doctor but: DUH.) However, he suspects that most of the growth was done between June and September. So she will get another ultrasound in February to see what the kidney’s size is then. If it continues to get larger and larger (rather than having plateaued off) she will have to get surgery. They will need to fix the ureter that’s connected to that kidney and straighten it out as it’s currently twisted and kinked. We know from the renal scan that her kidney empties fine (at 47 out of 50%) and that the other one picks up the remaining work but apparently if the kidney continues to get too large, the doctor says that it will cause too much pressure in there, eventually damaging the kidney.
As I sit here and think about this, though, I am a bit baffled. As I remember it in September, he was telling me about the function levels and that he was confident K would grow out of the urinary reflux. I guess it’s not really any different now, but I just feel like we took an extra 3 months to get to a conclusion we should have had in September. He was saying then that he was confident she wouldn’t need surgery. Nothing I can do about all that, I guess, just move forward, but it’s a little confusing for me.
So we shall see what we shall see. Hopefully the next ultrasound will show that the kidney is not growing too big. However, if she’s going to need surgery, I’d rather she get it now than have to deal with that when she’s older. He did say that at this point it’s not really an emergency or anything (hence following up in February). Of course, ideally it would be best if the ureter would straighten itself out! He wouldn’t say that the twisted ureter was the cause of the large kidney, but he said that the two are “intimately connected.” It’s also hard for me to wrap my head around that but I THINK that it means that the ureter contributes to the slower drain of the kidney but that until the ureter is fixed it means the doctor cannot say if that is the cause of the large kidney or not.
By the way, the photo was taken just before we left to go to the hospital yesterday. Kayleigh is modeling the sweater and bonnet made by Birgit‘s mum. It’s so sweet, I love it, and I melt when K wears it. :) Just something about a baby in a bonnet, heehee.
I’m glad we actually got it, too, as it was lost in the mail for a few months before finally showing up!!
And yes, I know I suck with my email and RSS reader. It’s catch-up time again, very soon!