I’ve been really proud of Kayleigh this year. Last school year and summer school ended with her not wanting to really go and whining and what not. This year, she’s started off at a run and she’s been doing really good. She’s saying more words, she’s participating almost all the time (she does apparently still have her days), and she’s enjoying it. Maybe it helps that I’m letting her ride the bus home. She really wanted to before and during summer school, there were a few times she actually chased the bus across the parking lot when I was picking her up. Yeah. So I drop her off and she rides the bus home. Each day she’s telling me, “I a goo gerrl a schoo.” That’s “I was a good girl at school,” for those of you that don’t speak Kayleigh. So yeah, yay for full sentences! We’ve gotten a few from her.
Of course, she’s still saying more at school and in her private therapy than she does at home. Some of that might be due to the need. There they are just forcing her pretty much to say random things. At home, it’s about life and living and if she needs to say something, she will or I will try to get her to at least. Like if she wants a cracker, she either says it the best way she can or if she’s not saying it, I do my best to get her to say it.
Speaking of the private speech therapy, we’d actually quit earlier in the summer because it just got to be too much to afford, it was killing us. I hated quitting. But Kayleigh ended up winning two grants, so we are back. The one grant is smaller and we will pick up a second day in the summer to use that one. It’s just hard to do more when the place is about 50 or so miles away, one direction. Plus, I don’t wan to overwhelm her, but when she’s out of school, she won’t have that 4 times a week, so she can do therapy 2 times a week until the grants run out at the beginning of next school year. Not sure yet what we’ll do then, but we’ll figure it out. Plus, you never know how things will go, maybe by then she won’t even need it.
Today we’ve got a bit of a “down” day – something that doesn’t happen too very often anymore. We were supposed to start K’s speech therapy back up early this morning but there’s some confusion with the contract from the people who awarded us the grant for therapy so the provider needs to iron that out first. Basically, they named the woman that was giving her therapy at the beginning of the summer as being the only one that can render services but that woman is no longer there, she just worked the summer. So, of course, the provider wants to follow the contract as they should, so it’s got to be revised. They would like to be listed as an entity rather than a single specific therapist in case a therapist is sick or goes on vacation, etc., then K won’t have to miss therapy that week. I know that it’s best to work with the same person on a regular basis when you can, but I agree with that, too. Sometimes new faces can come in and get different things out of her as well.
Her teacher told me yesterday morning when I dropped her off that she’s been doing really well this week and that the day before, Wednesday, she had said quite a few words. I wish she would say them more at home. Trying to be patient!
She will start Cubbies in AWANA this coming week for the first time. I held her back a year last year for a few reasons. But I am going to be doing my best to work hard with her to say her verses using her iPad. This will be interesting. This will be my fourth year working in Cubbies and thinking amongst the whole group, I don’t think we’ve had a kid yet in there that was unable to participate like K. We had one little girl one time with Downs who would have had difficulty but she only came a few times and I wasn’t in her group so I’m not sure what they did for book time. K will not be in my group either, at least to start, so I will have to show her teachers how to use the iPad and her signs and what not and hopefully they can coax her to do the verse. Even if she does not, the leader tells me she will progress with the rest of the class, but I really would like her to participate the best she can. It will be good for her. She’s not going to be able to just slide by in life. I don’t want her using her disability as a crutch, I want to teach her to work through it, to still do everything to the best of her ability.
So anyway, down day today. A day where I really don’t have to go anywhere… except the post office, ugh. I’ve been selling tons (for me anyway) of books we don’t use on Amazon. They are all homeschool or college curriculum. Most of them were basically pushed on me a few years ago. I didn’t really want them in the first place, I already had what I was doing. But I took them anyway and they’ve been sitting around gathering dust. This house is too small to have things sitting around gathering dust. So they are moving on out in an attempt to fix up the school/office/Lego room and organize it more. I see this is apparently a yearly process. Some of these books I gave away at the meeting the other night, determining they weren’t worth selling. In hindsight, some probably were but I just want them out and helping someone else who can and will use them. I accidentally marked one as shipped yesterday that wasn’t shipped yet – hadn’t realized a new order had come in while I was out. So I gotta make sure I get that in the mail today. I wonder if I can print postage at home, I do have a postal scale, if I’d just use it. Of course, I probably already missed the mail lady, quite taking our time today, we are. After that, I will be down to three books in my “for sale” pile. I also have a ton on paperbackswap and some have been there a while – mass market paperback just doesn’t move all that fast unless the book is brand new. If those are still here in a couple of months, off to Goodwill they go. Maybe they can make a little money on them, none are bad or unreadable books.
In other news, I had to order a new backdrop today. Both good and bad – bad because I hate spending money right now lol and good because I’m looking forward to the big project I have coming up for it. I do have several backdrops already and a few of them would have been more than appropriate, but I needed something bigger than 5’x5′ or 5’x7′ so I got me a 9’x10′. Going to be a big and probably stressful project – bigger than any like this I’ve done before – but it will be worth it!
For Kayleigh anyway. Elijah won’t start until September.
K has been SO excited to go back to school this year, and it’s not even “real” school. She’s still in the early childhood program and getting speech therapy and occupational therapy. She’s basically taken all of July and half of August off though she’s also going to start back with her private speech therapy this week.
She’s also so very excited to be riding the bus home. During summer school, on at least two occasions, she actually literally ran after the bus in the school parking lot and cried and what not that she wanted to go, too. So this time I am dropping her off and she’s riding home. Her first two days she’s gotten off the bus and just gabbered about it – of course, I can’t understand a word, but it’s adorable. She waves good bye and says gaga (bye bye) which is just something else because usually she refuses to give people the pleasure of her attention.
Her second day when I dropped her off, she gave one other little girl two hugs and then took the hand of another girl to walk inside the building. I have to get her to school when the bus is there or we have to take the long way for security reasons, so she was waiting for them to get off the bus. She’s not usually like that with people, she’s usually got a “don’t touch me under any circumstances” attitude. So this is good.
That time of year again, though the weather certainly does not reflect it. Not today, anyway. It was so gorgeous. Slightly on the warm side but devoid of humidity, unlike yesterday. Yesterday was so humid. I did a photo shoot in the evening and we all just condensated. It was pretty miserable though the photos don’t reflect it! I’ve shot in worse, though! Worse by far. But anyway, all that moved through and today was more like September than early August.
Kayleigh and I went down to her school for her open house and she’s actually really excited to go back. She thought she was going to school tonight. We got inside and she started to push me away, “Go, Mama.” It’s good, though. With her being out of school after summer school and having to stop the private therapy (unless we can get a grant, still waiting), I’ve completely laid off her. When she’s been receptive or trying to say words on her own, I’ve certainly encouraged it, but aside from a few times I’ve just let her be and not tried to push her with any “techniques” or anything. I think she’s appreciated it. She seemed to have been getting quite burned out by the time summer school was over and I just decided to let her be a 4 year old as best I can. She has started saying a few things. Moon, though she leaves off the “n” sound. Banana, without the “b.” And what not. But the weirdest one is “guck” which we have determined means “car.” Steve thought she was maybe saying “truck” and I guess that’s possible but we don’t have a truck, we refer to our vehicles as the car and the Jeep. So it seems unlikely, at least to me, that she would choose to apply “truck” to his car. It’s usually, “Dada guck.” She was excited to ride in his car to her open house tonight.
As for Elijah’s school… I honestly very seriously considered putting him in school. He’s just so obstinate and has a melt down if he gets a problem wrong or has to do any kind of work at all. Not that I thought he would miraculously behave but I thought maybe if it was someone other than me telling him what to do, he’d do it with less grumbling and maybe school would actually be fun for him. But he fought me on every angle with that and I really didn’t want to put him in school anyway. I considered a private school here but just cannot afford it. So this year, we’re going to do something new instead. I bought him the 5th grade suite of Switched on Schoolhouse and am getting him a laptop to run it on because I don’t want him using the “hub” laptop that I consider to be Steve’s, anyway. Elijah’s gonna get a used one though, running XP because it is only to be used for school. So we will see how this goes. Hopefully this will help make school more fun and flexible for him. He could bring it up to the living room rather than having to stay at his desk or easily take it to Grandma’s, etc. It’s expensive, but if this takes the stress out of school for us, I’m all for it. Plus, it’s the 2013 version so I’m sure I can sell it next year when he’s finished with it.
Me, I’ve been having a weird pain in the side of my head/neck. I’m not sure what it is, and, of course, I’m too stubborn to just run off to the doctor. We’ll see how it goes.
And, phrase of the week as heard earlier this evening: “Kayleigh, let’s play jousting tournament!” This, while they were sitting on bikes in the back yard each holding a long two inch diameter stick. Yeah, put a stop to that one real quick! Oh, the things this boy comes up with…
Last Friday evening, the boys were out of town for one night and, go figure, while K and I had a wonderful time together, in the middle of the night, we ended up in the ER with her first UTI. She’s had that urinary reflux since before birth, of course, and has been on an antibiotic ever since birth to ward off any infection. Well, it turned out she contracted a bacteria that had become resistant to the antibiotic, so she got sick, and it hit her hard and fast. We’ve really gone to the ER relatively few times for our family of four. I think Elijah has never had to go. Steve went once when he sliced his knee open with a chain saw. He barely even felt it and closed it up with butterfly closures but since he was out at his parents’ house cutting wood, they made him go in and get stitches. Good thing too, I can’t imagine that thing healing even close to properly without them! I went when I had the miscarriage before Kayleigh came along and then again when pregnant with Kayleigh early on. Then after she had been home about a month, and her g-button popped, and we hadn’t yet been taught how to change it out or put in a new one. Of course, that was the most traumatic, since the hole had already started to close. It was horrible.
So anyway, had I known the hospital would send me a bill for $250 for our copay (and it arrived only 3 business days later, at that), then I would have gone somewhere better. Don’t get me wrong, our family practitioner is part of this group and I really like him but… the guy we saw had me quadruple K’s amount of usual daily antibiotic. It was clear she had bacteria and they were getting a culture, which would take about 2 days. He admitted at the time that it was possible that the bacteria she had had gotten resistant to the antibiotic. I thought it was strange but who was I to question?
Sunday afternoon, she was showing absolutely no practice and was inconsolable. I called the help line for her pediatrician’s office. Why didn’t I do this in the first place? I knew they would have to do a urine test and so it was just better to just go in. (Or so I’d thought.) Anyway, he called her in a new antibiotic.
Monday she was already acting tons better. Heck, by Sunday night she was better. Still saying “ow” but not yelling crying and screaming. So the ER doctor finally called me with the results and sounded a bit panicked. He was happy to hear she had a new antibiotic and that it was one from the family of ones that the bacteria is susceptible to. I felt like I was on the phone with doctors and receptionists all day Monday. I also talked to the pediatrician’s office and the urologist’s office. It’s time for a check, too, so I’m waiting for them to get back with me.
Now, Wednesday, she’s doing much better. Still saying “ow” but she still has 6 days left on this antibiotic.
Poor little girl, though. And, of course, it’s so much harder with a non-verbal child. She was pointing and crying and such but she can’t give specific answers. I am just hoping that her kidneys themselves never had a chance for infection.